At SLC6A1-Spain we closely follow the spaces that help raise awareness of rare diseases and bring together families, professionals, bodies and organisations.
That is why we joined the 17th International Congress on Rare Diseases (XVII Congreso Internacional de Enfermedades Raras) online, on Friday 22 and Saturday 23 November 2024, at the Universidad Católica San Antonio de Murcia (UCAM).
These meetings encourage the exchange of knowledge and experience about rare diseases. They also help strengthen collaboration networks and keep the needs of affected people and their families in view.
For our association, taking part in initiatives like this is an opportunity to keep learning, share the reality of people with changes in SLC6A1 and help raise awareness of this condition.
We thank the organising and participating bodies for their work to bring rare diseases closer to society and to create spaces for meeting.